Resources
Our commitment is to work closely with physicians, researchers and patient associations throughout the lifecycle of our development programs in the interest of the larger patient and medical communities.
- X-ALD Resources
The following organizations provide educational resources related to X-linked Adrenoleukodystrophy (X-ALD) and support research to help families living with these and other rare diseases:
ALD infoALD ConnectEuropean Leukodystrophies Association (ELA)The Myelin ProjectALD Life (Alex TLC)Myelin ProjektOprha.Net – X-ALDAssociazione Italiana Adrenoleucodistrofia OnlusThe United Leukodystrophy FoundationThe ALD FoundationWorld Leukodystrophy AllianceFight ALDStop ALD FoundationGlobal Leukodystrophy Initiative
- FRDA Resources
The following organizations provide educational resources related to Friedreich's Ataxia (FRDA) and support research to help families living with these and other rare diseases:
